http://elliottucker.net A New Home for Bald Kids and Bed Pans. It's time to carry on as normal. Sat, 13 Dec 2008 00:22:12 +0000 http://backend.userland.com/rss092 en On Saturday, Ciara (and family) were invited to Santa's Winter Wonderland in Durrow by the The Bubblegum Club.  Santa, Mrs Clause, and his elves arrived at this beautiful country house on a Fire engine provided by Laois CC, as he had to park Rudolph et al nearby due to flight ... http://elliottucker.net/2008/12/not-just-a-bloke-in-a-suit/ Enjoying some late summer sun Virtuoso Performances Losing Teeth Growing Singing in school Watching tiny TVs Building camps with cousins Dressing up as pumpkins... ...for Halloween parties Shouting while covered in food Trying Lipstick http://elliottucker.net/2008/11/what-weve-been-up-to-lately/ Freddie came out Wednesday evening after a panic to catch a theatre.  She had another night in hospital as the op was late but no spikes or anything and she was out the following morning.  She's on top form despite battling a nasty cold.  Walk in the park for her. http://elliottucker.net/2008/10/freds-dead-baby-freds-dead/ Yes, Freddie is gay. In other news, Ciara's Hickman Catheter ("Freddie") is being removed tomorrow afternoon in an emergency op.  It's looking manky and smells a bit.   It was due to come out in December but they booked her in to have it done on Finn's 1st birthday!  Not fair, so ... http://elliottucker.net/2008/10/freddies-coming-out/ Ciara was in Crumlin on Tuesday to see her consultant, Dr O'Meara.  First time in for months. It seems we've lost our VIP status as we had to WAIT!...in a WAITING ROOM!!!!  We were the last to be seen as we didn't realise that we needed to get Ciara's weight ... http://elliottucker.net/2008/09/in-for-a-check-up/ This is a repost of the last post on Bald Kids and Bed Pans Ciara has just finished her first week at proper school - and has had a thoroughly good time by all accounts.  To mark this occasion, and to recognise that Ciara not longer uses a bed pan, and ... http://elliottucker.net/2008/09/first-week-at-school-and-a-new-start/ Today marked a day that on too many times we thought we'd never see. Ciara put on a new uniform and went to school for the first time. We're all so proud of her, the brave little girl has been through so much yet she's managed to put ... http://elliottucker.net/2008/09/a-big-day-and-a-new-chapter/ As mentioned in the last post, last Friday was The Bubblegum Club's annual Garden Party at Durrow Castle. This is an event put on for kids in Ireland who've had a bit of a shitty time of it recently, and there were a good couple of hundred kids going. ... http://elliottucker.net/2008/07/i-cant-believe-ive-waited-this-long-to-post-about-last-friday/ It's been eighteen months since Ciara went to any kind of school. When she was 3, she started going to Athy's Montessori. One of the last days she attended was way back in December 2006, when she performed at the Christmas show. Little did we know that ... http://elliottucker.net/2008/07/miss-fire-at-summer-camp/ Sorry it's been so long since the last post, the mundanaties of getting on with life rarely warrant a post. Here's a catchup though. Ciara's going from strength to strength and has tonnes of energy, more than her poor mum and dad can cope with. Her hair ... http://elliottucker.net/2008/06/long-time-no-speak/